Sunday, May 15, 2011
subjects would see the not-so-perfect prince and his not-so-perfect princess. Before the ball, there was a banquet, and they came from far and wide: aunts and uncles, fathers and mothers, a grandmother and a grandfather with his camera, cousins and friends, sisters and brothers, waiters and waitresses, and even the palace chef. As the people of the kingdom watched, the not-so-perfect prince walked up to the not-so-perfect princess, and with tears in his eyes, slid a bracelet of pink roses onto her outstretched arm. The princess gazed up at him and, with shaking hands (as well as a little help from the queen) pinned two perfect roses to his lapel. While all of this was going on, the two queen mothers locked eyes, but not for long, for they feared the
|The Prince and Princess...|
Tuesday, May 10, 2011
Recently, our minister at church preached an Easter sermon titled, "It's Not About Me." His words rang true to me as I reflect back on my experiences with having a child with Down Syndrome. I think I can say that I have safely made the trek from the "Why Me?" to an acceptence of a life, and a good life at that. Sure, things might have been easier if Jared did not have special needs, but there are really no guarantees, are there? So, I sit back and watch his life unfold before me. And it is a precious thing to watch. Jared is slowly leaving the somewhat egocentric venue of adolescence and starting to see, to really see the world around him. He wants to be a teacher assistant. I can see him working with young people, perhaps young people with special needs. He'd be a good guide for them, I think. Last night, I watched him at Special Olympics. His friend, Matt was having trouble opening his water bottle. I hadn't noticed, no one had, except Jared. I watched as he handed his water bottle to Gabby, and then reached out to Matt, took the bottle from his hand and opened it. Seeing Matt smile up at him in thanks for his help painted a picture of what Jared might do, of who he might be in this world. He loves people. He is becoming aware of them. He is helping. He is realizing, so much sooner than I ever did, that it truly is not about him.
Wednesday, May 4, 2011
Growing up With Jared: The Reservations are Made...: "I called yesterday to make reservations at a local restaurant where Jared and Gabs will dine before the prom. The owner was wonderful-makin..."
I called yesterday to make reservations at a local restaurant where Jared and Gabs will dine before the prom. The owner was wonderful-making special accomodations so that the kids can have their own table, with my sister, her husband, and John sitting with me at a nearby foursome. Poor prom kids-it'll probably be like being on a reality TV show with us watching their every move! I told Jared the reservations are under his name. I can't wait to here him announce their arrival to the hostess. Small things mean so much more when the road to adulthood has been a long and curvy one. Gabby has been prepping as well. She tried out the manicure color that she will be using: "I'm in the Mood for Love"...She told the girl at the salon that Jared would like that color...He better not like it too much! Gabby has been working on her tan as well. Flashes of my past come at me as I listen to these kids look forward to their special day. I remember laying on the paved driveway in 40 degree weather trying to work on my tan as well-love these NY Springs! These kids are living the dream, and we are so blessed to be a part of it! I'll be sure to send pics after the big day...It's coming up in about a week and1/2!